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Why is climate emergency a children’s rights crisis?

Climate emergency is a children’s rights crisis. They are the ones who suffer the most from its effects by having their development affected and rights violated by consequences ranging from natural disasters influenced by climate change to food and water scarcity.  Representing one third of the global population, children will suffer the longest from the consequences of the climate crisis in the future.  And they already see threats to their hard-won progress in securing their basic rights.  That is why they need to be at the center of public policies to fight the crisis.

– Read also: Climate Emergency and Childhoods: for a Future in the Present

Almost every child on the planet is exposed to at least one climate and environmental risk according to a report published in 2021 by UNICEF, a fund created by the UN to promote the rights and well-being of children and adolescents around the world.  Overall, according to the document, one billion of the world’s children, which is about half of the world’s child population, live in extremely high-risk countries, meaning that they are highly exposed to climate and environmental hazards and stressors.

Children have the right to decent housing, but natural disasters like flooding are increasingly destroying their homes.  Children have the right to water and food, but extreme weather events, desertification and drought result in water and food shortages.

“As children are undergoing a peculiar period of development and formation, they are extremely vulnerable to the impacts of climate change.  Extreme climate events directly harm a wide range of children’s rights, including their right to survival and development”, stated Lais Fleury, International Relations Officer of the Alana Institute.  

– Read also: The water crisis is a children’s rights crisis

To shed some perspective on the size of the problem, by 2030, climate change is expected to generate 95,000 more deaths of children under five years of age each year due to malnutrition, according to UN estimates.  

Meanwhile, rising temperatures are increasing the incidence of waterborne and vector-borne diseases such as malaria, dengue, fever and diarrhea. 80% percent of the people who died from malaria in 2014 were children, according to UNICEF.  

This crisis impacts children’s most basic rights to survive and thrive, consequently, reducing environmental risks could prevent the death of one in every four children worldwide, according to the UN.  The calculation takes into account a scenario in which these risks represent 25% of the total disease exposure for children up to five years of age.  It is, therefore, a serious global health problem.

In practice, we have also seen the effects of climate emergency threaten education.  If, on the one hand, extreme weather events are destroying schools, on the other hand, poor access to health and food affects child development and learning capacity.  In addition, there is the loss of family income due to climate stressors, which pushes children to help with household chores and to seek work, increasing the combo of violation of their rights.

– Read also: How climate emergency affects the education of children and young people

Children’s vulnerability in the climate crisis 

Girls, impoverished children, indigenous children, children with disabilities and other minorities are the first and most affected by climate change.  The emergency has further driven families to migrate, raising the pool of children on the move to cross borders, often far from school and subjected to child labor.

Although they are the group that contributes least to climate emergency, children are the most vulnerable to the effects of this crisis, whether directly or indirectly.  As they are less able to regulate their body temperatures on their own, children under five years of age will be more susceptible to heat waves expected to be so extreme – and to which 75% of the world’s population will be exposed by 2100, according to studies – that may even cause deaths.

Despite the evidence of the serious consequences of climate change for children, they are still barely paid attention to by the international and national structures working on the issue. 

In this context, promoting environmental education is imperative.  Children need to be supported to protect themselves from climate-related threats and exercise their right to be heard about policies and actions that seek to remedy harm.  They need to be addressed in all key climate governance structures. 

“To guarantee a quality education is to ensure that children, adolescents and adults have meaningful experiences with and in nature.  These experiences can occur through the school and its areas, providing conditions for students to love and care for life in all its forms.  From a contextualized, scientific and critical perspective, education, then, must address the issues that directly influence the present and the future of our existence, strengthening an environmental and climate citizenship to be instilled in a transversal and interdisciplinary manner throughout the whole school curriculum”, stated Raquel Franzim, Education and Children’s Culture Officer of the Alana Institute.    

Recommendations for the right to a balanced environment 

Aiming to ensure that the right of all children and adolescents to an ecologically balanced environment is guaranteed with absolute priority, the Alana Institute, through the program Children and Nature, contributed to the preparation of General Comment 26, a document that creates recommendations and guidelines for countries, companies and society to ensure the rights of children and the environment, with a focus on climate change.

These recommendations are published by the Committee on the Rights of the Child, which is made up of 18 independent experts who monitor countries’ implementation of the UN Convention on the Rights of the Child.  It is the most widely accepted human rights treaty in history, ratified by 196 countries.  

General Comment 26 has a number of warnings.  One of them is about the environmental racism that places children and adolescents from the global south among those most affected by the climate crisis.  The term refers to the urgency of addressing the causes, consequences and solutions to climate emergency from an anti-racist perspective.

– Read also: Legal policy brief: groundbreaking document broadens debate on children’s right to nature

The document also highlights the need to address the impacts of air pollution over this group, to ensure access to nature, food security and safe drinking water for all children. It also points to the need for special care regarding the rights of indigenous children and those from traditional communities, which is the group most affected by deforestation, fires, mercury contamination and climate change, losing their cultural heritage and their right to life.

In Brazil, deforestation and wildfires are among the main factors of greenhouse gas emissions and directly affect the health of children.  Peak burnings in the Amazon in 2019 have led to the hospitalization of over 5,000 children per month in the capitals of the region due to respiratory problems.  

Protecting the territories of indigenous peoples, in addition to preserving their history and identity, is also essential from an environmental and climatic perspective.  Aggressive action on the climate crisis is urgent or there will simply be no habitable world for children – now and in the future.

What is Climate Justice and how does it relate to children’s rights?

Climate Justice is the name of the global movement that seeks a fairer division of investment and responsibility in combating climate emergency.  It means understanding that the whole world already feels the effects caused by the climate crisis, such as the warming that increasingly generates floods, severe droughts and heat waves.  However, these consequences affect people and countries very differently and unequally, depending on their resources and degree of vulnerability.

Less industrialized countries and more vulnerable people, for instance, contribute less to aggravating the crisis, but are often the most susceptible to suffer its consequences, since they have less infrastructure and resources to face the problem.  This is why Climate Justice proposes that those who have most exploited the planet’s natural resources invest more and support, through projects, those who need it most, as they have more infrastructure and development.

It is a movement to try to ensure global justice for the often forgotten people who are most vulnerable to the impacts of climate change: impoverished people, women, children, black people, indigenous people, immigrants, people with disabilities and other marginalized minorities around the world.  Thus, Climate Justice is about securing and protecting human rights and trusting that working in community is the most effective way to secure the present and future for generations to come.  

“Climate Justice means to recognize that the climate crisis affects different groups and different communities differently.  The more vulnerable a community is, the more affected it is.  This global movement seeks, therefore, to bring solutions in an equitable way to groups that suffer the most from the crisis resulting from climate change”, stated Pedro Hartung, Policies and Children’s Rights Officer of the Alana Institute.

Therefore, it is important that climate change decisions are participatory, transparent and responsible, and that they are always in pursuit of gender equality and equity, as well as sharing the benefits and burdens equitably, as advocated by the Mary Robinson Foundation – Climate Justice, a leadership center fighting to ensure this global justice. 

– Read also: Climate Justice: hope, resilience and the struggle for a sustainable future

A healthy environment is now a human right 

The United Nations (UN) itself declared earlier this year, in July, that a healthy environment is a human right, marking an important step in action against the accelerating decline of the natural world.  The resolution has encouraged environmental advocates who believe it is important to push more and more countries to bring the spirit of this message into their constitutional laws and regional treaties.

“The resolution sends the message that no one can take nature or clean air and water from us, nor deprive us of a stable climate.  At least not without a fight,” Inger Andersen, executive director of the United Nations Environment Programme (UNEP), argued at the time. 

– Read also: Burning Biomes: the impact of forest fires on children’s health

The constitutional right to climate in Brazil

Since 1988, Brazil has recognized the climate as a constitutional right.  “Everyone has the right to an ecologically balanced environment, a common use asset for the people and essential to a healthy quality of life, and it is the duty of the government and the community to defend and preserve it for present and future generations,” states article 225 of the Brazilian Constitution.

The legislation foresees actions such as defining territories, protecting the national fauna and flora, and promoting environmental education.  The Brazilian Amazon Forest, the Atlantic Rainforest, the Serra do Mar, the Pantanal Mato-Grossense and the Coastal Zone are considered national heritage, so their use should happen under conditions that ensure the preservation of the environment and of the natural resources.

– Read also: Children live through memories and fear of fires in the Pantanal

However, this is not what has been happening in practice.  In recent decades, especially in the last few years, the country has seen deforestation and fires advance over the Amazon forest and other biomes.  The deforestation rate in the Amazon rose 73% in three years (from 2019 to 2021), according to the National Institute for Space Research (Inpe), linked to the Federal Government’s Ministry of Science, Technology, and Innovations.

Therefore, to achieve Climate Justice, we need to address the climate crisis right now, with concrete measures to preserve and protect the rights of future generations.  We also need to move forward and ensure compliance with laws that already exist in countries to limit pollution, protect nature and combat climate change.  

In this process, children and adolescents, who suffer and will suffer the most from the effects of climate change, must be made the priority, and their right to participation, both to listen to the problems and to find solutions, must be duly guaranteed.  Climate Justice requires joint action to preserve the planet.

“The climate crisis in childhood is not an abstract concept, but something experienced in the body, daily life and subjectivity of billions of babies and children in the world.  We need to create sensitive, deep and ethical listening paths to access what they have to tell us from their deepest feelings and statements, not only to ensure their right to participate in the issues that concern them, but, above all, because children teach us as a society to perceive the world from a different perspective”, argues Ana Claudia Leite, education and childhood advisor to the Alana Institute.

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Alana Institute is accepted as a member of Child Rights Connect

The Alana Institute joins, in early June, the Committee on the Rights of Children, Child Rights Connect, an international network of children’s rights, focusing on advocacy in the United Nations (UN).

Formed by more than 85 international organizations from countries such as the United States, Canada, Germany, Uruguay and Peru, the network’s objective is to ensure that children around the world can fully enjoy their rights, as set out in the Convention on the Rights of Children.

“Being part of this network is a recognition of our position as a global organization that looks at the well-being and rights of children and allows us to be even closer to major international discussions and bring children from the global south, especially from Brazil, with more strength to the UN system”, says Pedro Hartung, Director of Policies and Children’s Rights at Alana Institute.

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Memantine as a potential treatment for Down syndrome

The Alana Foundation and the Brazilian Federation of Down Syndrome Associations (FBASD) held a webinar on April 29 to present research on the use of memantine, a drug recommended for the treatment of individuals with Alzheimer’s, as a potential treatment to improve cognition of people with Down syndrome or trisomy 21 (T21).

Funded by the Alana Foundation, with support from the Awakening Angels Foundation (USA), and in partnership with institutions in the United States and Brazil, the study was published in January 2022 in The Lancet Neurology, the world’s number one medical journal in the area of neurology. The results indicate that the use of memantine may be a future treatment option for people with Down syndrome.

The meeting “Study of memantine in trisomy 21: results and future implications” brought together researchers Alberto Costa, physician, neuroscientist and director of clinical research at the International Association for Research in T21 – Trisomy 21 Research Society (T21RS), and Ana Claudia Brandão, pediatrician at the Center for Pediatric Specialties at Hospital Israelita Albert Einstein, who led the research in the United States and Brazil. The conversation was mediated by Alex Duarte, a specialist in Clinical and Institutional Psychopedagogy, and Fernanda Machado, a graphic designer with Down syndrome who participated in Expedition 21 – First Empowerment Immersion for people with intellectual disabilities.

The researchers presented, in a simple and accessible way, the objectives and developments of this research as a result of an effort to promote the health of people with Down syndrome. Watch (in Portuguese):

Despite not having demonstrated the expected effectiveness on the cognitive performance of people with Down syndrome, the research raised the possibility that they may metabolize drugs, such as memantine, in an unusual way. The study also raises the hypothesis that treatments with higher dosages may benefit these people. This discovery opens the door to new debates about treatments capable of improving the cognitive deficits associated with T21.

People with Down syndrome develop the earliest form of Alzheimer’s disease, points out Alberto Costa: “This pathology is practically universal at the age of 40 for these people”. Ana Claudia Brandão comments that the study intends to create more tools so they can expand their memory, and consequently, their performance and their role in schools, in the job market and in society. “We aim to improve their quality of life, associated with health, work, well-being, a sense of belonging and security, and the quality of the environment.”

And why research on memantine? “There are already several pre-clinical studies using memantine that show encouraging and positive results and that made us plan clinical studies, which involve human beings. Memantine is also already used with proven safety and efficacy in Brazil, the United States and Europe in the treatment of Alzheimer’s. In our country, it is available in pharmacies and in the Unified Health System, the SUS, that is to say, it is an affordable medication for the population”, completes the researcher.

Further studies are still needed to assess whether treatments with higher doses can benefit people with Down syndrome, as this will make it possible to be certain that memantine will have an impact on the quality of life of these people.

Access the full survey here.

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Science and knowledge in the search for a diverse world

“It is essential that research is carried out and technologies are developed to ensure that people with disabilities acquire practical and social skills to facilitate their participation in education systems, work and community life”. 

Excerpt from joint statement by Alana and MIT, March 20, 2019

The Alana Foundation, Alana’s philanthropic branch created in 2012 and headquartered in the United States, will donate US$ 28.6 million to MIT (Massachusetts Institute of Technology), to encourage the development of new technological and multidisciplinary research. Part of this initiative is the creation of the Alana Down Syndrome Center; a technology program for the development of research that can improve the lives of people with disabilities; and scholarships.

The donation, formalized on March 20, will give rise to the Alana Down Syndrome Center, hosted by the Picower Institute for Learning and Memory at MIT, which will involve the expertise of scientists and engineers in an initiative to deepen the biological and neuroscientific knowledge of Down syndrome. Down. The center, which will be led by scientists Angelika Amon – an expert in understanding chromosomal instability – and Li-Huei Tsai – recognized for her work with degenerative diseases, including Alzheimer’s disease – will also offer new opportunities for young scientists and students from around the world through scholarships.

The technology program will be in partnership with the Deshpande Center for Technological Innovation (“Technology to Foster Skills”) at MIT, in which the researcher seeks support and encouragement to design and develop technologies that can increase the quality of life and autonomy of disabled people. Together, the center and the program will help accelerate the creation, development and testing of new technologies that aim to enhance the quality of life of people with disabilities and increase their participation and inclusion in education, work and the community.

Watch the joint statement from Alana and MIT:

 

The donation made by the Alana Foundation supports the MIT Campaign for a Better World, publicly launched in 2016 with the mission to advance MIT’s work in education, research and innovation to address humanity’s most pressing challenges.

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McKinsey paper: Down syndrome and businesses

The value employees with Down syndrome can add to organizations

The McKinsey&Company consultancy, in partnership with the Alana Institute, launched an unprecedented paper on the positive impacts of people with Down syndrome on the job market. The study, carried out in Brazilian and foreign companies, demonstrates that employees with Down syndrome can improve the organizational health of companies in five out of nine dimensions.

Aspects such as leadership, team motivation, culture and climate, customer satisfaction and coordination and control can be positively impacted when there is an employee with Down syndrome on the team. The results obtained were very encouraging and offer a new perspective on the subject, contributing to the elimination of barriers related to the employability of people with disabilities.

Click on the image below to read the full survey (in Portuguese):

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